Palliative care and what it means in assisted living
At some point in our lives, most of us are faced with the confusing dilemma of what to do when a family member faces a serious chronic illness, is diagnosed with a terminal condition, or have elderly parents who can no longer independently care for themselves while dealing with a health condition.
Trying to digest the meaning of terms like nursing home, assisted living, hospice and palliative care can create an overwhelming maze of uncertainty that needs dissecting at a very stressful time.
Many times receiving palliative care is the answer. Palliative care is not a one-size-fits-all approach and can be provided in a variety of settings and under varied circumstances.
The goal of palliative care is to relieve symptoms such as pain, shortness of breath, fatigue, constipation, nausea, loss of appetite and difficulty sleeping. It helps patients gain the strength to carry on with daily life while dealing with a medical condition, improves their ability to tolerate medical treatments and helps them better understand their options.
Palliative care is for people of any age, with any disease or prognosis and at any point in an illness. It can be delivered along with treatments that are meant to cure. Hospice always provides palliative care. However, hospice care focuses on terminally ill patients, those people who no longer seek treatments to cure their illness.
A key benefit of palliative care is that it looks at the patient as a whole in order to meet their individual needs, such as how they may or may not be responding to treatment. A team of nurses, therapists and aides working together with the primary doctor provide palliative care.
Many people with chronic illnesses live in assisted living residences. Assisted living is marketed as a less expensive alternative to nursing homes, not just for seniors who need assistance with personal care or medication, but also for those with mild to moderate cognitive impairment or dementia.
Assisted living is state regulated. More than half the states have a philosophy, definition, or value statement about assisted living in their statutes, regulations, or Medicaid requirements. Several states, such as Florida, New Jersey, and Oregon, explicitly address the value of assisted living residence operations and services to promote aging in place, whiles others do not promote this concept.
For residents, who are called “tenants” in some states, the assisted living facility is their home, and most hope to spend the rest of their life there. If their health declines or their needs change over time, a robust palliative care program can make aging in place a more comfortable and dignified solution.
The concept of “aging in place” connotes the expectation that as needs increase, including the occasional need for skilled nursing care, the resident will remain and receive such services at their assisted living residence. Finding a facility that offers the appropriate level of care as needed is critical, since some states have specific licensing requirements limiting what level of care they can provide and what residents they can accept based on their condition and physical and mental capabilities.
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